On a weekend of record-breaking heat in a city with fewer than 33% of homes having AC, my community really came together and rallied to meet the needs of our neighbors. In a city with 11k-ish unhoused folks, I personally got to hand out just under 3k water bottles and 70 bags of ice, and I know there's another hundred or so people out there doing the same.
As of today, two days into the heat wave, there have been zero reported deaths from heat among the unhoused (to my knowledge). That's huge. And I'm so, so proud of my city right now.
Called it. Good game, though. Maybe next time don't wait until the last 2 minutes to bring on two fresh attackers who proceed to miss their penalties, though?
So after so much being cancelled over the past 18m or so, we are all packed up (with negative Covid tests all round) and heading to Silverstone to camp for the weekend at the F1.
Very excited 8yr nephew, slightly ambivalent (inwardly excited no doubt) 15yr old son and two over excited 40+ adults!
2 months into my 6 month certification process. Now I have a 3 day window to try and work on remodeling my master bathroom that the contractors fucked up so badly 2 years ago. Ripping it all out to the studs and slab, myself, starting w the shower. Will be awesome when it is done. Would be nicer if my prosthetist had a clue and made my socket so it fit instead of hurting more. That is a fight for tomorrow morning though.
In May, I got kinda roped into coming to this concert/event this weekend. I didnt really want to go because I hate cities and crowds, and my only connection to the guy asking me was the military brotherhood (I mean... tge guy was Chair Force FFS) and a small amount of LEO stuff...but so far it has been pretty cool and Ive met a who's who of state and federal contractors, vets, LEOs from around the country, just a bevvy of pretty cool people. I might even join their MC before this weekend is out, and tomorrow I get to go outshoot a guy from the clusterfuck of Benghazi. Not too shabby. Im glad I decided to play the social butterfly despite my leg being a little whorebag.
Ha. tons of stuff going on and dealing w a slight case of the 'rona... but life always has small pleasures. Watching our puppy chase butterflies and dragonflies through the yard is pretty damn cute.
Approved for apartment in another state and just put in the 30 days notice! Totally excited and not at all stressing over all the things that need to be done :D
Since my teenage years I have suffered daily headaches, natural & bright light sensitivity, extreme motion sickness while being a passenger in a vehicle, horrible neck & shoulder pain, anxiety when in large stores, and an almost constant feeling of nausea. These symptoms have gotten progressively worse, and in my early 20s I started to get migraines - once a year at first, then a couple times a year, progressing to one every two weeks.
My parents didn't have the money to ever take me to a doctor so I just kind of put up with the symptoms. It wasn't until I was about 25 that I could afford to see a doctor about it, but by then the symptoms were just a part of my life and I didn't realize how bad it had gotten because it slowly progressed instead of coming all at once. The doctor had me try dietary restrictions for the migraines - cutting out alcohol (especially wine) helped a lot, but at that time I didn't know to talk about my other health problems, I was focused on fixing the migraines.
Fast forward 10 years to the end of August. I was reading a Reddit thread about ADHD (something else I suffer from) and there was a comment from someone who has ADHD but also got migraines, light sensitivity, and he just listed off every single health problem I've had since those teenage years. His comment included his diagnosis, which was binocular vision dysfunction. I started looking into it, and it fit me perfectly. I couldn't believe it - I told myself there was no way this was my problem, that it fit too perfectly, it was too simple, and a lot of other things.
Then I scheduled an appointment with a neurological vision specialist, and that appointment was yesterday. I have been officially diagnosed with BVD and have special prism lenses being made that I'll have in about a week.
The visit took about 4 hours and they ran me through about a dozen different machines and tests. The doctor explained that my version is a verticle problem but some people have horizontal problems. Basically my eyes are slightly misaligned and don't send one clear image to my brain. They send slightly different images, which the brain tries to correct
About halfway through they put prism glasses on me and let me get used to them.
Within 5-10 minutes of the prism glasses my headache was gone, nausea was gone, neck pain half gone, and I didn't feel motion sick. My life is changed forever and I am raging internally at all of the doctors I saw who never noticed this, or even thought to check for it. Twice yearly eye doctor visits from when I was about 8 until 33 and no one ever mentioned it. I got Lasik done two years ago, they didn't notice or mention it. My doctor when I was a kid never mentioned it. My parents told me I was lying and didn't believe me. My whole life has been extremely negatively impacted by this in ways I can't even imagine. It's ruined friendships when I had to flake due to feeling sick, getting a ride to a party/group event from someone and getting sick on the way there and having to go home, dozens and dozens and dozens of missed days at school or work. Relationships ruined because I eventually lost confidence in going out and doing activities because half the time I'd get sick on the way there, which eventually turned into anxiety which made me feel MORE sick every time, to the point that I drifted apart from all my friends as well.
This time next week I'll have my new glasses, and my life will slowly go back to normal. I'll be able to read books, ride in vehicles, play sports, make plans, and so much more without having to worry. It feels like I'm going to have a new life and I'm so excited for it.
Honestly, probably not. I will definitely test if it gives me headaches & migraines (it could be that alcohol makes the BVD worse, I'm not sure and I didn't think to ask the doctor when I was there) - if it doesn't, I'll probably have a glass here or there.
Don’t rely on motivation. Focus on making gradual, SUSTAINABLE habits over time! Also don’t buy into the “move more, eat less” cardio-maniac thing. You’ll lose weight, sure, but half of that weight is gonna be muscle. Work on actions that’ll change your body composition to boost your metabolism instead. Also, make sure you -enjoy- your workouts :) Good luck, and if you need some help, hit me up
It could be the type of wine you were drinking too. I'm no wine expert but a girl I dated said that different sulfur levels in different wines can make for some interesting problems. She demonstrated it by having a couple different wines in the apartment, one that was high in them that gave me headaches and two that were less which did not. Might be something worth looking at if you liked wine and want to bring it back.
Thanks a lot @Aegoth! I appreciate the encouragement, well wishes, and advice. I definitely agree that I won't be able to rely solely on motivation, and that building sustainable habits is key. I twice did 12 week online PT "home gym training" during covid-19, and every time I ended up breaking the habit after the 12 weeks, mainly because I didn't have the accountability anymore.
So far I find it easier to build a habit in the gym though, in part because of all the awesome equipment, but also because I don't have to compete for space with family in our apartment. I also genuinely find myself enjoying it - and part of that is doing no cardio for now. Already have some of the right tweaks/mindsets you were advising. Definitely open for more help though, so will keep that in mind.
My prism glasses came in on Thursday afternoon (with a -.25/-.50 prescription). Within seconds of putting them on I could feel my eyes relax, the light felt normal instead of bright, and my forehead/temple muscles started to relax. It was like magic.
I have not had a headache since Thursday.
No migraine or even "this might turn into a migraine".
I feel normal going outside in the sunlight, I can do it with no sunglasses or squinting. Previous to the prism glasses I had to wear sunglasses 100% of the time while outside if the sun was up, even if it was cloudy.
My neck/shoulder pain has reduced 80%, I am having to re-learn how to sit properly. Before the glasses I would always sit at an angle with my head tilted as that felt better - this was due to BVD.
I can walk in straight lines without staring at the ground.
Driving isn't stressful anymore, before the glasses I always felt people were encroaching on my lane or merging too closely, etc. That was due to my peripheral depth perception basically not existing (I was not aware of this). Now I can feel exactly how much space is there and don't get a huge pang of anxiety whenever someone changes lanes next to me.
I am more calm/relaxed. My fiance struggled over the weekend because to her it felt like something was wrong with me. She thought I was upset because of my face & general posture/demeanor. Nope, I still love ya baby, it's just that my facial muscles are in a relaxed state instead of a flexed/squinting state all the time.
I feel more comfortable in public, and I actually wanted to get out of the apartment and do something over the weekend.
I am still in disbelief that the improvements were instant. I'm untangling emotions - I have a lot of anger at my parents & previous doctors, frustration with myself for taking this long to realize something was wrong, speculation on how my life would be different if I got these glasses when I was 15 instead of 35, and there's a big pit in my stomach that is full of the years I "wasted" being sick. I plan to see a therapist to help me work through all of that - while I can see light at the end of the tunnel, it will take a while to fully enjoy the end result.
Thank you for all the kind comments and support here. I know I haven't been around for years, it feels good to have people caring for me still.
To anyone else struggling with health issues - I know it sucks. I hope you can remain strong and find the help you need.
Comments
On a weekend of record-breaking heat in a city with fewer than 33% of homes having AC, my community really came together and rallied to meet the needs of our neighbors. In a city with 11k-ish unhoused folks, I personally got to hand out just under 3k water bottles and 70 bags of ice, and I know there's another hundred or so people out there doing the same.
As of today, two days into the heat wave, there have been zero reported deaths from heat among the unhoused (to my knowledge). That's huge. And I'm so, so proud of my city right now.
YEEEEEEAH!!!! MESSI !!!
So happy for Argentina, but man, Messi finally got the Copa. Amazing.
And tomorrow we get to watch England cry.
Called it. Good game, though. Maybe next time don't wait until the last 2 minutes to bring on two fresh attackers who proceed to miss their penalties, though?
Ah, I'm sure the World Cup will be their year.
I don't understand how you follow that game up with a Mexico/Trinidad game. GTFOH.
I lol'd in the 55' when Neymar's floppy ass was in the box, took a soft touch of the ball, spun around and fell with defenders like 3ft away.
And was in disbelief when Messi messed up dribbling into the goal (89'?).
I hoped that England would win but.... I missed the dame game. Can't convert RL times either.
Spent the day drinking beer at an arena roping event, I'm sunburned, smell like horse.
My brother in law and father in law won third place in the roping trials and won 5,000.00 though.
Then wen't and did a drunk costco trip.
Overall good weekend.
So after so much being cancelled over the past 18m or so, we are all packed up (with negative Covid tests all round) and heading to Silverstone to camp for the weekend at the F1.
Very excited 8yr nephew, slightly ambivalent (inwardly excited no doubt) 15yr old son and two over excited 40+ adults!
Booking my CotA hotel late SUCKS. Have fun bro. I would love to do the Silverstone visit..lucky SOBriquet.
Let me know if you ever come over for it, I'll come with you. Could probably get in on a carers ticket.... ;)
haha. Those wheelchair seats are extra spacious!
2 months into my 6 month certification process. Now I have a 3 day window to try and work on remodeling my master bathroom that the contractors fucked up so badly 2 years ago. Ripping it all out to the studs and slab, myself, starting w the shower. Will be awesome when it is done. Would be nicer if my prosthetist had a clue and made my socket so it fit instead of hurting more. That is a fight for tomorrow morning though.
In May, I got kinda roped into coming to this concert/event this weekend. I didnt really want to go because I hate cities and crowds, and my only connection to the guy asking me was the military brotherhood (I mean... tge guy was Chair Force FFS) and a small amount of LEO stuff...but so far it has been pretty cool and Ive met a who's who of state and federal contractors, vets, LEOs from around the country, just a bevvy of pretty cool people. I might even join their MC before this weekend is out, and tomorrow I get to go outshoot a guy from the clusterfuck of Benghazi. Not too shabby. Im glad I decided to play the social butterfly despite my leg being a little whorebag.
Ha. tons of stuff going on and dealing w a slight case of the 'rona... but life always has small pleasures. Watching our puppy chase butterflies and dragonflies through the yard is pretty damn cute.
@Caelan which MC? Stumps of Anarchy?
( <3 )
LOL. Good one.
Hell's Mangleds.
(Actually they were the Shadow Warrior Riders MC, mostly from TX and FL. It was a pretty fun event and Im glad I went.)
My daughter made this for me 😊
Approved for apartment in another state and just put in the 30 days notice! Totally excited and not at all stressing over all the things that need to be done :D
This is part rant, but mostly rave.
Since my teenage years I have suffered daily headaches, natural & bright light sensitivity, extreme motion sickness while being a passenger in a vehicle, horrible neck & shoulder pain, anxiety when in large stores, and an almost constant feeling of nausea. These symptoms have gotten progressively worse, and in my early 20s I started to get migraines - once a year at first, then a couple times a year, progressing to one every two weeks.
My parents didn't have the money to ever take me to a doctor so I just kind of put up with the symptoms. It wasn't until I was about 25 that I could afford to see a doctor about it, but by then the symptoms were just a part of my life and I didn't realize how bad it had gotten because it slowly progressed instead of coming all at once. The doctor had me try dietary restrictions for the migraines - cutting out alcohol (especially wine) helped a lot, but at that time I didn't know to talk about my other health problems, I was focused on fixing the migraines.
Fast forward 10 years to the end of August. I was reading a Reddit thread about ADHD (something else I suffer from) and there was a comment from someone who has ADHD but also got migraines, light sensitivity, and he just listed off every single health problem I've had since those teenage years. His comment included his diagnosis, which was binocular vision dysfunction. I started looking into it, and it fit me perfectly. I couldn't believe it - I told myself there was no way this was my problem, that it fit too perfectly, it was too simple, and a lot of other things.
Then I scheduled an appointment with a neurological vision specialist, and that appointment was yesterday. I have been officially diagnosed with BVD and have special prism lenses being made that I'll have in about a week.
The visit took about 4 hours and they ran me through about a dozen different machines and tests. The doctor explained that my version is a verticle problem but some people have horizontal problems. Basically my eyes are slightly misaligned and don't send one clear image to my brain. They send slightly different images, which the brain tries to correct
About halfway through they put prism glasses on me and let me get used to them.
Within 5-10 minutes of the prism glasses my headache was gone, nausea was gone, neck pain half gone, and I didn't feel motion sick. My life is changed forever and I am raging internally at all of the doctors I saw who never noticed this, or even thought to check for it. Twice yearly eye doctor visits from when I was about 8 until 33 and no one ever mentioned it. I got Lasik done two years ago, they didn't notice or mention it. My doctor when I was a kid never mentioned it. My parents told me I was lying and didn't believe me. My whole life has been extremely negatively impacted by this in ways I can't even imagine. It's ruined friendships when I had to flake due to feeling sick, getting a ride to a party/group event from someone and getting sick on the way there and having to go home, dozens and dozens and dozens of missed days at school or work. Relationships ruined because I eventually lost confidence in going out and doing activities because half the time I'd get sick on the way there, which eventually turned into anxiety which made me feel MORE sick every time, to the point that I drifted apart from all my friends as well.
This time next week I'll have my new glasses, and my life will slowly go back to normal. I'll be able to read books, ride in vehicles, play sports, make plans, and so much more without having to worry. It feels like I'm going to have a new life and I'm so excited for it.
Moved into new place, and now have two new house plants, Jeremy and Yelchin.
@Cooper will you be reintroducing wine?
Honestly, probably not. I will definitely test if it gives me headaches & migraines (it could be that alcohol makes the BVD worse, I'm not sure and I didn't think to ask the doctor when I was there) - if it doesn't, I'll probably have a glass here or there.
@Cooper Texas meetup 2021 yeehaw
Started going to the gym regularly. Motivation is high, so I am hoping I can manage to make a habit of this.
Don’t rely on motivation. Focus on making gradual, SUSTAINABLE habits over time! Also don’t buy into the “move more, eat less” cardio-maniac thing. You’ll lose weight, sure, but half of that weight is gonna be muscle. Work on actions that’ll change your body composition to boost your metabolism instead. Also, make sure you -enjoy- your workouts :) Good luck, and if you need some help, hit me up
It could be the type of wine you were drinking too. I'm no wine expert but a girl I dated said that different sulfur levels in different wines can make for some interesting problems. She demonstrated it by having a couple different wines in the apartment, one that was high in them that gave me headaches and two that were less which did not. Might be something worth looking at if you liked wine and want to bring it back.
https://zbiotics.com
Thanks a lot @Aegoth! I appreciate the encouragement, well wishes, and advice. I definitely agree that I won't be able to rely solely on motivation, and that building sustainable habits is key. I twice did 12 week online PT "home gym training" during covid-19, and every time I ended up breaking the habit after the 12 weeks, mainly because I didn't have the accountability anymore.
So far I find it easier to build a habit in the gym though, in part because of all the awesome equipment, but also because I don't have to compete for space with family in our apartment. I also genuinely find myself enjoying it - and part of that is doing no cardio for now. Already have some of the right tweaks/mindsets you were advising. Definitely open for more help though, so will keep that in mind.
Update to this post:
My prism glasses came in on Thursday afternoon (with a -.25/-.50 prescription). Within seconds of putting them on I could feel my eyes relax, the light felt normal instead of bright, and my forehead/temple muscles started to relax. It was like magic.
I have not had a headache since Thursday.
No migraine or even "this might turn into a migraine".
I feel normal going outside in the sunlight, I can do it with no sunglasses or squinting. Previous to the prism glasses I had to wear sunglasses 100% of the time while outside if the sun was up, even if it was cloudy.
My neck/shoulder pain has reduced 80%, I am having to re-learn how to sit properly. Before the glasses I would always sit at an angle with my head tilted as that felt better - this was due to BVD.
I can walk in straight lines without staring at the ground.
Driving isn't stressful anymore, before the glasses I always felt people were encroaching on my lane or merging too closely, etc. That was due to my peripheral depth perception basically not existing (I was not aware of this). Now I can feel exactly how much space is there and don't get a huge pang of anxiety whenever someone changes lanes next to me.
I am more calm/relaxed. My fiance struggled over the weekend because to her it felt like something was wrong with me. She thought I was upset because of my face & general posture/demeanor. Nope, I still love ya baby, it's just that my facial muscles are in a relaxed state instead of a flexed/squinting state all the time.
I feel more comfortable in public, and I actually wanted to get out of the apartment and do something over the weekend.
I am still in disbelief that the improvements were instant. I'm untangling emotions - I have a lot of anger at my parents & previous doctors, frustration with myself for taking this long to realize something was wrong, speculation on how my life would be different if I got these glasses when I was 15 instead of 35, and there's a big pit in my stomach that is full of the years I "wasted" being sick. I plan to see a therapist to help me work through all of that - while I can see light at the end of the tunnel, it will take a while to fully enjoy the end result.
Thank you for all the kind comments and support here. I know I haven't been around for years, it feels good to have people caring for me still.
To anyone else struggling with health issues - I know it sucks. I hope you can remain strong and find the help you need.
Cooper got real life arties too. Welcome to the club, and Im glad they are helping!
I never wanted the lol button back more than I do right now.